You have to see yourself in society to be a part of that society
Visual activism to confront and challenge societal preconceptions:
Look → Think → Act
Simi Linton (1998) in Claiming Disability: Knowledge and Identity quoted by Rosemarie Garland-Thomson: "We wield that white cane, or ride that wheelchair or limp that limp” … luxuriate in that stammer?
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The portrait invites us to stare, engrossed perhaps less with the “strangeness” of this woman’s disability and more with the strangeness of witnessing such dignity in a face that marks a life we have learned to imagine as unliveable and unworthy, as the kind of person we routinely detect in advance through medical technology and eliminate from our human community.
— Garland-Thomson (2009)
Flaunt the visible marks of disability. The relish with which disabled people can live their identity and present themselves to the starees.
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What is the fluent gaze? Can we see it in cinema? Is the gaze the right conception due to the auditory nature of stammering? Is there an oppositional gaze: a stammered/dysfluent gaze?
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‘The scene for the portrait is designed by a stammerer; photographed and painted by a stammerer; of a stammerer stammering. The stammered gaze.’ — Patrick Campbell
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Close-up of Dysfluent mono typeface, in use in Dysfluent magazine issue 1.
What is the fluent gaze? Can we see it in cinema? Is the gaze the right conception due to the auditory nature of stammering? Is there an oppositional gaze: a stammered/dysfluent gaze?
<hr>
‘The scene for the portrait is designed by a stammerer; photographed and painted by a stammerer; of a stammerer stammering. The stammered gaze.’ — Patrick Campbell
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Close-up of Dysfluent mono typeface, in use in Dysfluent magazine issue 1.
Publication
The action of making something generally known.
— Oxford Dictionary
The format that the text / typeface is packaged in is as important as the textual content or typeface itself. Kind of like how in JJJJJerome’s work, there’s an interesting relationship to song or score sheets, through his use of a publication that is linked to his music. The format of this requires a unique level of engagement from the reader and listener.
Since I created the first issue of Dysfluent, I have been thinking about how the format of a publication defines the intent behind the work. It made me think about while there is a certain power to publication, there is also a quietness and consideration to it. At least from a design or artistic perspective, it requires a great deal of engagement from the viewer.
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Protest
A statement or action expressing disapproval of or objection to something.
— Oxford Dictionary
Recently I have been thinking of this concept of display, or posters, or for lack of a better term, protest.
Protest to me is really interesting from a creative or design stand point. For a person to display a poster, it is a deliberate act of reflecting an inner voice or identity, for the world to see.
I think of teenagers pinning up posters in their bedrooms, and of people marching on the streets voicing concerns. There is a certain passion or aggression (maybe not the right word?) to the idea of posters.
How does the idea of protest or display speak to earlier discussions on stigma?
I was interested to see what Fiona showed earlier in our talks, that banner where children visualised their stammer. There is something really nice there in terms of displaying their dysfluency.
It gets me thinking then. What is the content of the posters? What do they say? Do they need to say anything? or can they just be visualisations of dysfluency?
Publication
The action of making something generally known.
— Oxford Dictionary
The format that the text / typeface is packaged in is as important as the textual content or typeface itself. Kind of like how in JJJJJerome’s work, there’s an interesting relationship to song or score sheets, through his use of a publication that is linked to his music. The format of this requires a unique level of engagement from the reader and listener.
Since I created the first issue of Dysfluent, I have been thinking about how the format of a publication defines the intent behind the work. It made me think about while there is a certain power to publication, there is also a quietness and consideration to it. At least from a design or artistic perspective, it requires a great deal of engagement from the viewer.
<hr>
Protest
A statement or action expressing disapproval of or objection to something.
— Oxford Dictionary
Recently I have been thinking of this concept of display, or posters, or for lack of a better term, protest.
Protest to me is really interesting from a creative or design stand point. For a person to display a poster, it is a deliberate act of reflecting an inner voice or identity, for the world to see.
I think of teenagers pinning up posters in their bedrooms, and of people marching on the streets voicing concerns. There is a certain passion or aggression (maybe not the right word?) to the idea of posters.
How does the idea of protest or display speak to earlier discussions on stigma?
I was interested to see what Fiona showed earlier in our talks, that banner where children visualised their stammer. There is something really nice there in terms of displaying their dysfluency.
It gets me thinking then. What is the content of the posters? What do they say? Do they need to say anything? or can they just be visualisations of dysfluency?
Effects of Mr. Angry (my stammer) in school
- Tries to make fun of me.
- I know the answer but I don’t want to say it.
- I put in the wrong answer so I don’t get stuck.
- Sometimes act like I am thinking then when I am ready to say it I say it.
- In the yard I don’t do it all because I am not worried about him, just concentrating about what I am playing.
Committee for the Big Stutter Party
Self disclosure/stereotype threat:
- Children can develop a “growth mindset” through learning that success takes effort.
- mistakes are opportunities to learn and grow from.
- This mindset encourages children to seek out new challenges and fulfil their potential.
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Therapeutic practices must adapt to shifts in the conditions of people’s lives.
— Winslade (2013)
It is no longer enough to give people a relationship in which they are free from being judged. What they need is an opportunity to actively deconstruct the normalising judgements operating on them and to push back against the effects of these judgements.
— Winslade, p.8 (2013)
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Committee for the Big Stutter Party
Self disclosure/stereotype threat:
- Children can develop a “growth mindset” through learning that success takes effort.
- mistakes are opportunities to learn and grow from.
- This mindset encourages children to seek out new challenges and fulfil their potential.
<hr>
Therapeutic practices must adapt to shifts in the conditions of people’s lives.
— Winslade (2013)
It is no longer enough to give people a relationship in which they are free from being judged. What they need is an opportunity to actively deconstruct the normalising judgements operating on them and to push back against the effects of these judgements.
— Winslade, p.8 (2013)
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Communication in this mode emphasizes the shared act of constructing, celebrating, and repairing common worlds.Carey famously suggests that communication is here akin to attending religious mass, where the point is not to transmit information but to draw people together in communion—to produce and maintain a shared view of the world through repeated practices. What makes the prayer, chant, and ceremony significant is their function as both social practices and techniques of the self. Through their repetition, we develop collective sensibilities and patterns of perception by which we can build common worlds. —meaning gets enacted in the very midst of unruly bodies that excrete “all levels of expression, from the minute details of discourse—from pitch, emphasis, gesture, head tilts, and eye gaze” (p. 44). Twitching bodies, stuttering tongues, signing fingers, and slurred lips (and all the affect they carry along) are no longer distracting “accidentals,” but the very materiality of communion. —In the mode of transmission, meaning would flee this scene, yet in the mode of ritual, the frozen supplication is a link to the body’s ancient relation to meaning and language, one in which we do not command but must together wait in the unexpected.
- Carey, J. (2009). Communication as culture: Essays on media and society. Routledge.
- Padden, C. (2015). Communication. In R. Adams, B. Reiss & D. Serlin (Eds.), Keywords for Disability Studies (pp. 43-45). New York University Press.
- Constantino, C. (2016). Stuttering gain [Paper presentation]. International Stuttering AwarenessDay Conference. http://isad.isastutter.org/isad-2016/papers-presented-by-2016/stories-and-experiences-with-stuttering-by-pws/stuttering-gain-christopher-constantino/
Communication as Ritual
- Communication, commonness, communion.
- James Carey: the model directs our attention “not toward the extension of messages in space but toward the maintenance of society in time; not the act of imparting information but the representation of shared beliefs".
- Akin to religious mass.
- Akin to reading a paper “[n]ews reading, and writing, is a ritual act and moreover a dramatic one. What is arrayed before the reader is not pure information but a portrayal of the contending forces in the world [emphasis added]” (p. 16).
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Dysfluent Accidents as Ritual
- Carol Padden: Ritual emphasizes “performance, activity, and the materiality of communication itself. In this framework, meaning is not so much the definition of a word or sentence but instead is constructed in situ, in social and cultural activity” (p. 44).
- Unlike sending a message, meaning gets enacted in the very midst of unruly bodies that excrete “all levels of expression, from the minute details of discourse—from pitch, emphasis, gesture, head tilts, and eye gaze” (p. 44).
- Moreover, since communication happens “on site,” time cannot be transcended or otherwise avoided with speed but must be lived through.
- Crossed Wires: perhaps it's not that my grumpy co-worker “misheard” my stuttered speech, but that he didn’t want to listen and did not want to belong in time to a common world with this disabled person.
- The Stall: “Part of it feels like my body goes into a kind of supplication or prayer almost. I have a friend who once referred to it as ‘watching me ask for the word’” (Ellis, 2020, n.p.).
- The misfire: “The unexpectedness of stuttering forces both listener and speaker into a space of trust and vulnerability. They must both give up control of the situation. The person speaking does not know when and for how long they will stutter. Likewise, the person listening does not know when to expect a stutter. In order for both people to communicate, they must trust one another. (Constantino 2016, para. 5)
- Ritual? Anti-ritual?
Communication as Ritual
- Communication, commonness, communion.
- James Carey: the model directs our attention “not toward the extension of messages in space but toward the maintenance of society in time; not the act of imparting information but the representation of shared beliefs".
- Akin to religious mass.
- Akin to reading a paper “[n]ews reading, and writing, is a ritual act and moreover a dramatic one. What is arrayed before the reader is not pure information but a portrayal of the contending forces in the world [emphasis added]” (p. 16).
<hr>
Dysfluent Accidents as Ritual
- Carol Padden: Ritual emphasizes “performance, activity, and the materiality of communication itself. In this framework, meaning is not so much the definition of a word or sentence but instead is constructed in situ, in social and cultural activity” (p. 44).
- Unlike sending a message, meaning gets enacted in the very midst of unruly bodies that excrete “all levels of expression, from the minute details of discourse—from pitch, emphasis, gesture, head tilts, and eye gaze” (p. 44).
- Moreover, since communication happens “on site,” time cannot be transcended or otherwise avoided with speed but must be lived through.
- Crossed Wires: perhaps it's not that my grumpy co-worker “misheard” my stuttered speech, but that he didn’t want to listen and did not want to belong in time to a common world with this disabled person.
- The Stall: “Part of it feels like my body goes into a kind of supplication or prayer almost. I have a friend who once referred to it as ‘watching me ask for the word’” (Ellis, 2020, n.p.).
- The misfire: “The unexpectedness of stuttering forces both listener and speaker into a space of trust and vulnerability. They must both give up control of the situation. The person speaking does not know when and for how long they will stutter. Likewise, the person listening does not know when to expect a stutter. In order for both people to communicate, they must trust one another. (Constantino 2016, para. 5)
- Ritual? Anti-ritual?
- What kinds of ‘narratives’/voices do we want?
- Resistance to narratives of recovery/overcoming.
- Narratives of the non-linear, the messy, the entangled?
- What kinds of ‘narratives’/voices do we want?
- Resistance to narratives of recovery/overcoming.
- Narratives of the non-linear, the messy, the entangled?
Sveinn Snær Kristjánsson, Malbjorg (National Stuttering Association in Iceland).
Sveinn Snær Kristjánsson. My Photo Project Shows That Stuttering Should Not Be Ashamed Of.
- Facilitating cultural competence and awareness
- Understanding the dynamics of stigma, self-stigma and masking and the psychological consequences of living with a concealable stigmatised identity
- Exploring the lived experience and feelings associated with stammering in an ableist world that privileges fluency
- Understanding minority stress and ableist trauma
- Supporting the development of new affirming narratives around stammering
- Finding own unique stammering aesthetic
- Disclosure and self-advocacy
- Community
- Public information and education programmes
- Reducing barriers – creating a stammer-friendly environment and culture
- Campaigning
- Lobbying
- Representation
- Cultural change
- Celebration of stammering and difference
- Facilitating cultural competence and awareness
- Understanding the dynamics of stigma, self-stigma and masking and the psychological consequences of living with a concealable stigmatised identity
- Exploring the lived experience and feelings associated with stammering in an ableist world that privileges fluency
- Understanding minority stress and ableist trauma
- Supporting the development of new affirming narratives around stammering
- Finding own unique stammering aesthetic
- Disclosure and self-advocacy
- Community
- Public information and education programmes
- Reducing barriers – creating a stammer-friendly environment and culture
- Campaigning
- Lobbying
- Representation
- Cultural change
- Celebration of stammering and difference