Aesthetic
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Sveinn Snær Kristjánsson, Malbjorg (National Stuttering Association in Iceland).
Sveinn Snær Kristjánsson. My Photo Project Shows That Stuttering Should Not Be Ashamed Of.
- Facilitating cultural competence and awareness
- Understanding the dynamics of stigma, self-stigma and masking and the psychological consequences of living with a concealable stigmatised identity
- Exploring the lived experience and feelings associated with stammering in an ableist world that privileges fluency
- Understanding minority stress and ableist trauma
- Supporting the development of new affirming narratives around stammering
- Finding own unique stammering aesthetic
- Disclosure and self-advocacy
- Community
- Public information and education programmes
- Reducing barriers – creating a stammer-friendly environment and culture
- Campaigning
- Lobbying
- Representation
- Cultural change
- Celebration of stammering and difference
- Facilitating cultural competence and awareness
- Understanding the dynamics of stigma, self-stigma and masking and the psychological consequences of living with a concealable stigmatised identity
- Exploring the lived experience and feelings associated with stammering in an ableist world that privileges fluency
- Understanding minority stress and ableist trauma
- Supporting the development of new affirming narratives around stammering
- Finding own unique stammering aesthetic
- Disclosure and self-advocacy
- Community
- Public information and education programmes
- Reducing barriers – creating a stammer-friendly environment and culture
- Campaigning
- Lobbying
- Representation
- Cultural change
- Celebration of stammering and difference
In his speech The Meridian the poet Paul Celan explains encountering language in poetry as a shape, direction, and breath. He describes poetry’s reach towards otherness, and how poetry stages an encounter with one’s self, a kind of homecoming to the self only through this unfinished reach towards otherness. At the end he says language is immaterial but earthly and terrestrial - it is a circle with poles that rejoin each other – a meridian, and he says, “I have touched it” to touch the meridian – is to touch the terrestrial, recursive shape of language, and we can imagine this as a kind of buccal touch. The lips make an 0 circle shape, and to speak is always to feel the work of language in and around the mouth. The stutter, I think – the way it returns us to words and sounds and syllables (what Celan calls a breath-turn), is an example of touching the meridian and having a queer relation to language.
- Celan, Paul (1960) The Meridian.
This ‘still-here’ can only mean speaking. Not language as such, but responding and not just verbally – ‘corresponding’ to something.
In other words: language actualized, set free under the sign of a radical individuation which, however, remains as aware of the limits drawn by language as of the possibilities it opens.
This ‘still-here’ of the poem can only be found in the work of poets who do not forget that they speak from an angle of reflection which is their own existence, their own physical nature.
This shows the poem yet more clearly as one person’s language become shape and, essentially, a presence in the present.
The poem is lonely. It is lonely and en route. Its author stays with it.
Does this very fact not place the poem already here, at its inception, in the encounter, in the mystery of encounter?
I find something as immaterial as language, yet earthly, terrestrial, in the shape of a circle which, via both poles, rejoins itself and on the way serenely crosses even the tropics: I find a… meridian.
With you and Georg Büchner and the State of Hesse, I believe I have just touched it again.
— Celan (1960)
This ‘still-here’ can only mean speaking. Not language as such, but responding and not just verbally – ‘corresponding’ to something.
In other words: language actualized, set free under the sign of a radical individuation which, however, remains as aware of the limits drawn by language as of the possibilities it opens.
This ‘still-here’ of the poem can only be found in the work of poets who do not forget that they speak from an angle of reflection which is their own existence, their own physical nature.
This shows the poem yet more clearly as one person’s language become shape and, essentially, a presence in the present.
The poem is lonely. It is lonely and en route. Its author stays with it.
Does this very fact not place the poem already here, at its inception, in the encounter, in the mystery of encounter?
I find something as immaterial as language, yet earthly, terrestrial, in the shape of a circle which, via both poles, rejoins itself and on the way serenely crosses even the tropics: I find a… meridian.
With you and Georg Büchner and the State of Hesse, I believe I have just touched it again.
— Celan (1960)
To stutter is often to feel the edges and the walls of lamguage, in the mouth, in the glottis, on the face, in the chest. It can be to experience those parts of language which do not signify but that force us to encounter the stuff that language is made of and the other buccal functions from which language is inseparable, such as eating, breathing, chocking, kissing, humming, hissing, coughing, drinking, sucking, vomiting, licking, swallowing, wheezing, and blowing. We often avoid paying attention to the stuff of language because it reminds us of the mechanical and involuntary crust upon the transparent flow of social and economic institutions and the rational expectations of social interactions.
I have two examples about what it might mean to experience the matter of language queered. The first I’ll call wood, and it comes from the Italian thinker Giorgio Agamben. Agamben writes in his essay “The Idea of Matter:”
“There where language ends is not where the unsayable begins, but rather the matter of language. He who has never reached, as in a dream, that woodlike substance of language that the ancients called silva remains, even when he is silent, a prisoner to representations.”
— Agamben.
This is a very loaded assertion, but by “prisoner to representations” Agamben is referring to a use of language that is reduced to transparent meaning, pre signification, supple communication, and pure intelligibility that conceals the medium of that which you use to communicate. You’re a fly in a box who doesn’t see the glass walls. Silva, meaning wildwood, is also a term for a poetic form enjoyed by the ancient Romans, and it trades on its metaphorical meaning as material for construction. If language is woodlike, it has a texture, a grain, colour, rings. It is hard while it can be broken down, built up, pulped, and refigured. It is attached to non-wood things like leaves. Agamben’s reference to the dream gives it a more ethereal resonance. Without going too deeply into the dream theory, Freud noticed that words are often treated in dreams as though they were things. Jean-Francois Lyotard provides an example from a poster of what dreaming does to language. In Frédéric Rossif’s poster Révolution d'Octobre, the words are physically folded as if rippled on a 3D surface by the wind, and the letters become distorted. Conor Foran’s stuttering font is another example of the distortion of words by the pressures of desire upon language. Language can do a great deal outside of representation.
<hr>
To stutter is often to feel the edges and the walls of lamguage, in the mouth, in the glottis, on the face, in the chest. It can be to experience those parts of language which do not signify but that force us to encounter the stuff that language is made of and the other buccal functions from which language is inseparable, such as eating, breathing, chocking, kissing, humming, hissing, coughing, drinking, sucking, vomiting, licking, swallowing, wheezing, and blowing. We often avoid paying attention to the stuff of language because it reminds us of the mechanical and involuntary crust upon the transparent flow of social and economic institutions and the rational expectations of social interactions.
I have two examples about what it might mean to experience the matter of language queered. The first I’ll call wood, and it comes from the Italian thinker Giorgio Agamben. Agamben writes in his essay “The Idea of Matter:”
“There where language ends is not where the unsayable begins, but rather the matter of language. He who has never reached, as in a dream, that woodlike substance of language that the ancients called silva remains, even when he is silent, a prisoner to representations.”
— Agamben.
This is a very loaded assertion, but by “prisoner to representations” Agamben is referring to a use of language that is reduced to transparent meaning, pre signification, supple communication, and pure intelligibility that conceals the medium of that which you use to communicate. You’re a fly in a box who doesn’t see the glass walls. Silva, meaning wildwood, is also a term for a poetic form enjoyed by the ancient Romans, and it trades on its metaphorical meaning as material for construction. If language is woodlike, it has a texture, a grain, colour, rings. It is hard while it can be broken down, built up, pulped, and refigured. It is attached to non-wood things like leaves. Agamben’s reference to the dream gives it a more ethereal resonance. Without going too deeply into the dream theory, Freud noticed that words are often treated in dreams as though they were things. Jean-Francois Lyotard provides an example from a poster of what dreaming does to language. In Frédéric Rossif’s poster Révolution d'Octobre, the words are physically folded as if rippled on a 3D surface by the wind, and the letters become distorted. Conor Foran’s stuttering font is another example of the distortion of words by the pressures of desire upon language. Language can do a great deal outside of representation.
<hr>
Sveinn Snær Kristjánsson, Malbjorg (National Stuttering Association in Iceland).
- Sveinn Snær Kristjánsson. My Photo Project Shows That Stuttering Should Not Be Ashamed Of.
- Davis, Leonard J. (1997) The Disabilities Studies Reader. Routledge/Taylor & Francis Group.
- Garland-Thomson, Rosemaire. (2009) Staring: How We Look. Oxford University Press.
Male gaze (Laura Mulvey)
Dr. Carol Marcus a Leading scientist, has doctorate in applied physics, specializing in advanced weaponry, who happens to take her clothes off halfway through a movie made in 2013 (Star Trek: Into Darkness).
<hr>
Medical/clinical gaze (Michel Foucault)
<hr>
White gaze (Toni Morrison)
The white gaze is the assumption that the default reader or observer is coming from a perspective of someone who identifies as white, or that people of color sometimes feel need to take into account the white reader or observer's reaction. Various authors of color describe it as a voice in their heads that reminds them that their writing, characters, and plot choices are going to be judged by white readers, and that the reader or viewer, by default, is white.
<hr>
Ideas of oppositional gazes have developed: the female gaze
Female gaze has been used to refer to the perspective a female filmmaker (screenwriter/director/producer) brings to a film that would be different from a male view of the subject. Having a female cinematographer allows women to be viewed as they really are and not the voyeuristic spectacle that the male gaze makes them out to be.
Male gaze (Laura Mulvey)
Dr. Carol Marcus a Leading scientist, has doctorate in applied physics, specializing in advanced weaponry, who happens to take her clothes off halfway through a movie made in 2013 (Star Trek: Into Darkness).
<hr>
Medical/clinical gaze (Michel Foucault)
<hr>
White gaze (Toni Morrison)
The white gaze is the assumption that the default reader or observer is coming from a perspective of someone who identifies as white, or that people of color sometimes feel need to take into account the white reader or observer's reaction. Various authors of color describe it as a voice in their heads that reminds them that their writing, characters, and plot choices are going to be judged by white readers, and that the reader or viewer, by default, is white.
<hr>
Ideas of oppositional gazes have developed: the female gaze
Female gaze has been used to refer to the perspective a female filmmaker (screenwriter/director/producer) brings to a film that would be different from a male view of the subject. Having a female cinematographer allows women to be viewed as they really are and not the voyeuristic spectacle that the male gaze makes them out to be.
Giovanni Bellini St. Francis in the desert. Painted c. 1480 in Venice. Frick Collection, New York.
'I became fascinated by the expression on St. Francis's face in this painting by Giovanni Bellini. It seemed to mirror my experience of the temporary loss of control over my body while stammerin.' – Paul Aston.
Self portrait stuttering. Oil on board 23 x 31cm. Painting by Paul Aston.
I have a stutter that has helped to shape my life in several ways. Recently I have started to accept my stutter as an integral part of what makes me who I am and feel really happy about it . I've been trying to find positive portraits of stuttering in art history and have drawn a blank so far so I thought I'd make my own. The inspiration came from Giovanni Bellini's 'St. Francis in the Desert' in the Frick collection. In this painting the saints head is thrown back while he receives the stigmata. It has a strangely familiar quality to me - that temporary loss of control over your body which looks similar to the experience of stuttering. I've attempted to create the atmosphere of this temporary loss of control in this piece.
Stammered Gaze. Portrait of Patrick Campbell Stammering. Oil on board 9 x 12 inches. Painting by Paul Aston.
Patrick is a Doctor and a co-author of 'Stammering Pride and Prejudice, Difference not Defect'. Here are Patrick's thoughts on the painting:
'I wanted this portrait to tell my story of stammering. Stammerers do not always get the chance to tell own their story. We are typically type-cast into the role of tragedy, inspiration or clown depending on what seems to best fit the occasion. The gaze of fluent people often decides how we are seen and perceived. Here, I wanted stammerers to take control of the lens/paintbrush.
I chose the location. A local park I love with cute dogs. I tried to stammer on the letter ‘P’. The letter has been a source of anguish over many years as I introduced myself, but these days I try to see stammering as a part of myself, a part of my identity. ‘P-P-Patrick’. I chose a jumper that (in theory) I own but my girlfriend spends more time wearing than me. This reflects that stammering is a shared experience, sometimes an intimate one, with others.
In the background, you may notice a magpie or two sitting among the birch trees. I wanted my northern routes to be a part of the picture as well as my stammer. The magpie is Paul’s representation of this (the symbol of Newcastle United Football Club). The birch trees are Paul’s idea too. A pioneer species that often starts off a new woodland. Make of that what you will, apparently the original black pines of the park were too difficult to integrate into the portrait.
The scene for the portrait is designed by a stammerer; photographed and painted by stammerer; of a stammerer stammering. The stammered gaze.'
- Campbell, P., Constantino, C., Simpson, S. (Eds) (2019) Stammering: Pride & Prejudice. Surrey, UK: J & R Press.
Portrait of Ramdeep Romann stammering. Oil on board 12 x 12 inches. Painting by Paul Aston.
Here are Ramdeep’s thoughts on his life with a stutter and this portrait collaboration.
“I have spent most of my life hiding my stammer, deeply ashamed of how I would be perceived by my peers if I were to block on some dreaded sound. This irrational and toxic fear was borne from a life seeing stammerers being portrayed in the most insensitive way possible on virtually every form of media I have ever watched. I cannot count the opportunities I turned down or denied myself; too many times I hid in silence instead of speaking my mind for fear of humiliating myself with this disability. For too long I thought a competent doctor should not stammer.
But finally meeting other stammerers and realising there is a whole community campaigning for our stuttered voice to be heard made me realise that I have nothing to be ashamed of, nothing to apologise for. My stammer is a part of who I am, WHAT I say is more important than HOW I say it, and I will never allow it to silence me again.
This beautiful painting by my friend Paul shows me finally turning away from the darkness and facing the light, with a stammered word etched on my face but my gaze still turned forward and upwards, unashamed and uncowed. The hospital scrubs represent my new found pride in embracing myself as a doctor who stammers.”
Self portrait stuttering. Oil on board 23 x 31cm. Painting by Paul Aston.
I have a stutter that has helped to shape my life in several ways. Recently I have started to accept my stutter as an integral part of what makes me who I am and feel really happy about it . I've been trying to find positive portraits of stuttering in art history and have drawn a blank so far so I thought I'd make my own. The inspiration came from Giovanni Bellini's 'St. Francis in the Desert' in the Frick collection. In this painting the saints head is thrown back while he receives the stigmata. It has a strangely familiar quality to me - that temporary loss of control over your body which looks similar to the experience of stuttering. I've attempted to create the atmosphere of this temporary loss of control in this piece.
Stammered Gaze. Portrait of Patrick Campbell Stammering. Oil on board 9 x 12 inches. Painting by Paul Aston.
Patrick is a Doctor and a co-author of 'Stammering Pride and Prejudice, Difference not Defect'. Here are Patrick's thoughts on the painting:
'I wanted this portrait to tell my story of stammering. Stammerers do not always get the chance to tell own their story. We are typically type-cast into the role of tragedy, inspiration or clown depending on what seems to best fit the occasion. The gaze of fluent people often decides how we are seen and perceived. Here, I wanted stammerers to take control of the lens/paintbrush.
I chose the location. A local park I love with cute dogs. I tried to stammer on the letter ‘P’. The letter has been a source of anguish over many years as I introduced myself, but these days I try to see stammering as a part of myself, a part of my identity. ‘P-P-Patrick’. I chose a jumper that (in theory) I own but my girlfriend spends more time wearing than me. This reflects that stammering is a shared experience, sometimes an intimate one, with others.
In the background, you may notice a magpie or two sitting among the birch trees. I wanted my northern routes to be a part of the picture as well as my stammer. The magpie is Paul’s representation of this (the symbol of Newcastle United Football Club). The birch trees are Paul’s idea too. A pioneer species that often starts off a new woodland. Make of that what you will, apparently the original black pines of the park were too difficult to integrate into the portrait.
The scene for the portrait is designed by a stammerer; photographed and painted by stammerer; of a stammerer stammering. The stammered gaze.'
- Campbell, P., Constantino, C., Simpson, S. (Eds) (2019) Stammering: Pride & Prejudice. Surrey, UK: J & R Press.
What is the fluent gaze? Can we see it in cinema? Is the gaze the right conception due to the auditory nature of stammering? Is there an oppositional gaze: a stammered/dysfluent gaze?
<hr>
‘The scene for the portrait is designed by a stammerer; photographed and painted by a stammerer; of a stammerer stammering. The stammered gaze.’ — Patrick Campbell
<hr>
Close-up of Dysfluent mono typeface, in use in Dysfluent magazine issue 1.
What is the fluent gaze? Can we see it in cinema? Is the gaze the right conception due to the auditory nature of stammering? Is there an oppositional gaze: a stammered/dysfluent gaze?
<hr>
‘The scene for the portrait is designed by a stammerer; photographed and painted by a stammerer; of a stammerer stammering. The stammered gaze.’ — Patrick Campbell
<hr>
Close-up of Dysfluent mono typeface, in use in Dysfluent magazine issue 1.
You have to see yourself in society to be a part of that society
Visual activism to confront and challenge societal preconceptions:
Look → Think → Act
Simi Linton (1998) in Claiming Disability: Knowledge and Identity quoted by Rosemarie Garland-Thomson: "We wield that white cane, or ride that wheelchair or limp that limp” … luxuriate in that stammer?
<hr>
The portrait invites us to stare, engrossed perhaps less with the “strangeness” of this woman’s disability and more with the strangeness of witnessing such dignity in a face that marks a life we have learned to imagine as unliveable and unworthy, as the kind of person we routinely detect in advance through medical technology and eliminate from our human community.
— Garland-Thomson (2009)
Flaunt the visible marks of disability. The relish with which disabled people can live their identity and present themselves to the starees.
You have to see yourself in society to be a part of that society
Visual activism to confront and challenge societal preconceptions:
Look → Think → Act
Simi Linton (1998) in Claiming Disability: Knowledge and Identity quoted by Rosemarie Garland-Thomson: "We wield that white cane, or ride that wheelchair or limp that limp” … luxuriate in that stammer?
<hr>
The portrait invites us to stare, engrossed perhaps less with the “strangeness” of this woman’s disability and more with the strangeness of witnessing such dignity in a face that marks a life we have learned to imagine as unliveable and unworthy, as the kind of person we routinely detect in advance through medical technology and eliminate from our human community.
— Garland-Thomson (2009)
Flaunt the visible marks of disability. The relish with which disabled people can live their identity and present themselves to the starees.
To prepare for painting the portraits, a collaborative process was undertaken:
- Discussion stage.
- How do you want to be portrayed?
- What is your stammering aesthetic?
- Where will it be set?
- Photo shoot.
- Painting and writing.
- Are both people happy?
- Publishing.
Images of publication courtesy Justin Lubliner.
- Ellis, JJJJJerome. (2021) The Clearing. Wendy's Subway.
Images of publication courtesy Justin Lubliner.
- Ellis, JJJJJerome. (2021) The Clearing. Wendy's Subway.
Effects of Mr. Angry (my stammer) in school
- Tries to make fun of me.
- I know the answer but I don’t want to say it.
- I put in the wrong answer so I don’t get stuck.
- Sometimes act like I am thinking then when I am ready to say it I say it.
- In the yard I don’t do it all because I am not worried about him, just concentrating about what I am playing.
- Masten, Ann. (2001). Masten AS. Ordinary magic. Resilience processes in development. Am Psychol.56(3):227-238. The American psychologist. 56. 227-38. 10.1037/0003-066X.56.3.227.
- Winslade, John. (2013) From being non-judgemental to deconstructing normalising judgement, British Journal of Guidance & Counselling, DOI:10.1080/03069885.2013.771772.
Committee for the Big Stutter Party
Self disclosure/stereotype threat:
- Children can develop a “growth mindset” through learning that success takes effort.
- mistakes are opportunities to learn and grow from.
- This mindset encourages children to seek out new challenges and fulfil their potential.
<hr>
Therapeutic practices must adapt to shifts in the conditions of people’s lives.
— Winslade (2013)
It is no longer enough to give people a relationship in which they are free from being judged. What they need is an opportunity to actively deconstruct the normalising judgements operating on them and to push back against the effects of these judgements.
— Winslade, p.8 (2013)
<hr>
Committee for the Big Stutter Party
Self disclosure/stereotype threat:
- Children can develop a “growth mindset” through learning that success takes effort.
- mistakes are opportunities to learn and grow from.
- This mindset encourages children to seek out new challenges and fulfil their potential.
<hr>
Therapeutic practices must adapt to shifts in the conditions of people’s lives.
— Winslade (2013)
It is no longer enough to give people a relationship in which they are free from being judged. What they need is an opportunity to actively deconstruct the normalising judgements operating on them and to push back against the effects of these judgements.
— Winslade, p.8 (2013)
<hr>
Publication
The action of making something generally known.
— Oxford Dictionary
The format that the text / typeface is packaged in is as important as the textual content or typeface itself. Kind of like how in JJJJJerome’s work, there’s an interesting relationship to song or score sheets, through his use of a publication that is linked to his music. The format of this requires a unique level of engagement from the reader and listener.
Since I created the first issue of Dysfluent, I have been thinking about how the format of a publication defines the intent behind the work. It made me think about while there is a certain power to publication, there is also a quietness and consideration to it. At least from a design or artistic perspective, it requires a great deal of engagement from the viewer.
<hr>
Protest
A statement or action expressing disapproval of or objection to something.
— Oxford Dictionary
Recently I have been thinking of this concept of display, or posters, or for lack of a better term, protest.
Protest to me is really interesting from a creative or design stand point. For a person to display a poster, it is a deliberate act of reflecting an inner voice or identity, for the world to see.
I think of teenagers pinning up posters in their bedrooms, and of people marching on the streets voicing concerns. There is a certain passion or aggression (maybe not the right word?) to the idea of posters.
How does the idea of protest or display speak to earlier discussions on stigma?
I was interested to see what Fiona showed earlier in our talks, that banner where children visualised their stammer. There is something really nice there in terms of displaying their dysfluency.
It gets me thinking then. What is the content of the posters? What do they say? Do they need to say anything? or can they just be visualisations of dysfluency?
Publication
The action of making something generally known.
— Oxford Dictionary
The format that the text / typeface is packaged in is as important as the textual content or typeface itself. Kind of like how in JJJJJerome’s work, there’s an interesting relationship to song or score sheets, through his use of a publication that is linked to his music. The format of this requires a unique level of engagement from the reader and listener.
Since I created the first issue of Dysfluent, I have been thinking about how the format of a publication defines the intent behind the work. It made me think about while there is a certain power to publication, there is also a quietness and consideration to it. At least from a design or artistic perspective, it requires a great deal of engagement from the viewer.
<hr>
Protest
A statement or action expressing disapproval of or objection to something.
— Oxford Dictionary
Recently I have been thinking of this concept of display, or posters, or for lack of a better term, protest.
Protest to me is really interesting from a creative or design stand point. For a person to display a poster, it is a deliberate act of reflecting an inner voice or identity, for the world to see.
I think of teenagers pinning up posters in their bedrooms, and of people marching on the streets voicing concerns. There is a certain passion or aggression (maybe not the right word?) to the idea of posters.
How does the idea of protest or display speak to earlier discussions on stigma?
I was interested to see what Fiona showed earlier in our talks, that banner where children visualised their stammer. There is something really nice there in terms of displaying their dysfluency.
It gets me thinking then. What is the content of the posters? What do they say? Do they need to say anything? or can they just be visualisations of dysfluency?